Judge: Baby Charlie Gard will end life in hospice, not home


"This case is now about time", Armstrong said.

"For Charlie, it's too late, time has run out".

He said: As I disclosed in court on 13 July, I have relinquished and have no financial interest in the treatment being developed for Charlie's condition.

An assessment in the United Kingdom from a USA doctor who specializes in mitochondrial depletion syndrome, the rare disease from which Charlie is suffering, said the boy was past the time when the treatments would help.

The judge deciding the issue said he believes there are only two options - Great Ormond Street Hospital or a hospice.

His parents said the result was that because of the delays, the time frame when treatment would have helped had expired, and their son would never be helped by even the experimental treatment. After exhausting treatment options in London, a judge ruled that taking Charlie to the USA for an untested experimental treatment would do more harm than good.

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Almost a year ago, Connie Yates and Chris Gard took their ideal new-born son home from hospital.

In response, GOSH lawyers told the court: "Charlie is a child who requires highly specialised treatment".

Lawyers for Great Ormond Street said bosses had suggested mediation, but added that Charlie's parents had not wished to use the services of a mediator. "Many of these messages are menacing, including death threats", the hospital said in a statement.

The hospital, she said, had searched for an intensive care specialist who is willing to supervise the care at home, but failed.

This, he said, is the debate on whether the state ought to be "the health care provider of last resort", stepping in as a third party who gets to decide where it's limited resources will be spent.

The judge this week condemned social-media commentators who discuss the case without knowing the facts.

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Among the most potent of these questions regards the ethics of a court stepping in and denying parents the right to seek a treatment which may benefit their child.

Yates was in court for the hearing before judge Nicholas Francis.

"What if it was your child?" and "Hope you're happy with yourself" before leaving the court in tears. "Chance of improvement can't now be delivered". But he conceded it had never been tried on a human with Charlie's exact condition and no tests had ever been done on mice to see whether it would work on a patient like Charlie. He and a group of doctors examined Charlie last week and gave their expert opinions to the judge. Monday's announcement that Charlie's parents would no longer challenge the decision to withdraw treatment came just days before the High Court's final decision had been expected.

They started a GoFundMe page on to raise money for the travel expenses and medical costs, hitting their target of $2.2m AUD, however, the courts ruled that transporting Charlie across countries would only lead to further suffering.

Yates stood beside her husband yesterday on the steps of the U.K. High Court as he gave a solemn address to the press about their decision to let Charlie die.

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